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Research and References

RESEARCH COMPLETED using the MHFMS and MHFMS-Extend modules:


SMA CARNI-VAL TRIAL Multi-center Phase II Trial of Valproic Acid and Carnitine in Patients with Spinal Muscular Atrophy


Pilot Trial of Valproic Acid in Spinal Muscular Atrophy


Pilot Trial of Sodium Phenylbutyrate in Spinal Muscular Atrophy


A Pilot Sudy of Biomarkers for SMA (BforSMA)
    http://clinicaltrials.gov/ct2/show/NCT00756821?term=spinal+muscular+atrophy&rank=2


SMA CARNI-VAL TRIAL Multi-center Phase II Trial of Valproic Acid and Carnitine in Patients with Spinal Muscular Atrophy- Argentina


CURRENT RESEARCH using the MHFMS:


We are currently exploring factors relevant to participation and enjoyment in children with spinal muscular atrophy ages 2-12 in the:
I Play SMA Study (Involvment vs Participation in Leisure Activities in Youth with SMA).

Natural History of SMA- University of Utah


LINK here for complete listing of current Clinical trials in SMA:


http://clinicaltrials.gov/ct2/results?term=spinal+muscular+atrophy


http://www.fsma.org/Research/Clinical/ClinicalTrials/


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MHFMS and MHFMS-EXTEND: Krosschell KJ: Copyright ©2004
All funding and support for this project was provided by
FSMA